Stephen's Journey: Still Going Strong

Tuesday, January 4, 2011

Still Going Strong

Got my epidural a few hours ago and just waiting for things to start moving. Looks like that might not be until early evening. Until then we're just hanging out watching my contractions come and go.

12 comments:

Charlene FreedJanuary 4, 2011 at 2:56 PM
Thinking of you!
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UnknownJanuary 4, 2011 at 3:05 PM
Wow! You look great! I'm impressed! :)
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NaomiJanuary 4, 2011 at 3:12 PM
Fingers crossed and prayers from us to your family, we'll be following what's going on x
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SuzanneJanuary 4, 2011 at 4:46 PM
Yay Lindsey! You look great. You, Billy and Stephen will be in our thoughts and prayers! Looking forward to seeing updates!
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HeatherJanuary 4, 2011 at 4:48 PM
Love it.... :) Love that IPAD xoxo
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DebJanuary 4, 2011 at 5:13 PM
I heard the news and was hoping to see an update or 2. All my prayers go to you guys today and the next coming days!!
XOXO,
Deb
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Masters RentalJanuary 4, 2011 at 5:16 PM
I am Danielle's photog friend down in Georgia. She shared your link on FB. Our family is praying for y'all.
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AnonymousJanuary 4, 2011 at 6:01 PM
We are all praying for you! Watching and waiting for new updates. Thanks for taking the time to keep us all up to date! We love you ALL!

Matt & Kristin
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AnonymousJanuary 4, 2011 at 7:33 PM
Praying for and thinking about you all!!!!!
Donna Devlin
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Megan HJanuary 4, 2011 at 7:59 PM
Good luck Linds. Will be thinking of you and the rest of the family.

<3 Megan
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AnonymousJanuary 4, 2011 at 9:20 PM
You are in our thoughts and prayers.
Miriam and Luis
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Michele KarlJanuary 4, 2011 at 10:40 PM
Thinking of you. Let me know if I can do anything.
Michele
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!