Friday, November 30, 2012


Oh how things change in a couple of hours. We're currently sitting in the hospital outside of the pediatric ICU. Stephen was admitted last night around 10pm for a suspected infection; somewhere in his body.

I knew he wasn't feeling well yesterday when all he wanted to do was lay on the floor or be held. Then he took a long nap and when I got him up, he just laid on the carpet. By the time Bill got home from work, he was pretty warm and wouldn't you know, he had a 103.6 fever and was looking really pale. So we took him to the ER and they started their battery of tests.

The first round of tests showed that there appears to be some kind of infection and he is very anemic. The infection doesn't seem to be in his dialysis fluid, but we won't know for sure for another 24-48 hours. And because Stephen is now aware of what's going on, it's very hard to figure out what hurts because any time the doctors try to feel his belly he freaks out.

Over night they have him Tylenol to break the fever, IV fluids and a blood transfusion. There was no sleeping because they poked and prodded him every hour, but they gave him some more tylenol this morning and he's sleeping now.

So now we're just in a holding pattern waiting to see what the cultures grow if anything. Best case scenario is that this is just a viral thing and they'll get him all tweaked up and we'll be home by the end of the weekend. Worst case; this is a blood infection or something that would cause them to have to pull Stephen's catheter. But I don't think it's the latter.

And of course in true Stephen fashion, Bill and I were planning to spend the weekend in NYC to celebrate his birthday with a show and dinner with friends. A much needed mini-vacation. But I guess Stephen just didn't want us to go without him, so we're all snuggled together in his ICU room instead. Maybe next year we'll finally make it.

Thursday, November 29, 2012

Family Photos

As promised, I've got lots of awesome pictures to share!!  A few weeks ago, the wonderfully talented and generous Stephanie Ascari came to the house to take some photos of Stephen and the three of us.  I told her over the phone that I wasn't sure if we'd be able to get any good photos of Stephen since the last time I tried to have someone take his picture, he was very unhappy with me. But in true Stephen fashion, he proved me utterly wrong and hammed it up for Stephanie.  As you can see, these pictures were post-first haircut :)

You can check out Stephanie's work on her website at:  

Or on her Facebook page at:

Wednesday, November 28, 2012

My Apologies

So sorry for the lack of posts this past week or two; we've been without internet since Friday and I just got up and running again.  It's the worst possible week to lose the internet since I do 90% of my Christmas shopping online, but I guess maybe it's been good for the wallet :)

Lots of awesome pictures coming soon.....

Monday, November 12, 2012

First Haircut

We took Stephen on Sunday morning to get his first real haircut!  His hair and the curls on the sides were really cute, but it was getting pretty unruly and since he's almost two, we figured it was about time.  Bill had found a barber a few weekends ago in our neighborhood and had seen a lot of kids getting their hair cut that day, so we figured we'd give it a shot!

I wasn't sure how it would go and at first it was pretty dicey (Stephen wouldn't let the poor guy near him), but thankfully another Dad in the barber shop suggested I give Stephen a video or something to watch to distract him and that worked pretty well.  He loves anything on my iPhone, so that worked pretty well while the guy was cutting his hair.  But anytime he tried to get the trimmers near Stephen's head, he freaked out.  But I think the results are pretty good.  It's really short and I definitely miss those curls, but I do know it will grow fast and next time I might have him leave it a little longer on top.  But there's no mistaking that this baby boy is now looking more and more like a little boy!!

Thursday, November 8, 2012

Old McDonald Had A...

Last Sunday we took Stephen to a nearby park that is a working farm (thanks Grandma and Grandad Schwartz for finding it) to see the animals and had some great photo ops!  Some of Stephen's favorite words and sounds are animals sounds and he didn't disappoint!  You can hear Stephen in the video "talking" with the rooster and the rooster talking right back all the while the cows in the pen next door wanted to get in on the conversation.  It was hilarious!!!  And it was actually a pretty cool looking rooster!

And here are some pictures of Stephen checking out the sheep; another one of his favorite animal sounds.  Lucky for us, this farm is only about 10 minutes from our house, so I'm sure we'll be frequent visitors to the Frying Pan Farm Park!

Friday, November 2, 2012

Halloween Pics

As promised, here are our Halloween pictures! Hopefully you can tell from the pictures that we had such a blast taking Stephen trick-or-treating for the first time. I actually think Bill and I might have had more fun than Stephen; well,especially when we tried to "force" Stephen to wear the lion mane. He was not a fan. But he definitely understood what we were doing and had fun playing with his candy. And he even ate some of a lollipop which was so cool (considering he doesn't eat a thing)! And we got a chance to meet all of our new neighbors. All-in-all it was a successful Halloween!

Sorry if the pictures post out of order.