Stephen's Journey: My Apologies

Wednesday, November 28, 2012

My Apologies

So sorry for the lack of posts this past week or two; we've been without internet since Friday and I just got up and running again. It's the worst possible week to lose the internet since I do 90% of my Christmas shopping online, but I guess maybe it's been good for the wallet :)

Lots of awesome pictures coming soon.....

1 comment:

AnonymousNovember 29, 2012 at 8:40 AM
Hi Lindsey,
Glad to hear that it was only the internet problem keeping you from posting. You know your old aunt gets worried when she doesn't see a post for a couple of days. Hope you all had a great Thanksgiving and that Stephen is looking forward to Christmas and Santa Claus. We will look forward to your upcoming posts.
Love,
Aunt LuAnn
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!