If the results of the VCUG are not favorable, option B is to have a catheter placed in Stephen's bladder and do bladder cycling. It's similar to his dialysis actually, but would involve me pushing saline into his bladder twice a day to help stretch it out. It seems like a good solution except for one big problem; it requires an actual surgery to place the catheter and then Stephen would have one more open hole in his body and another route for infection. Not something I really want to mess with prior to his transplant. The last thing we need is anything setting us back from transplant. So I'm pretty against Plan B and hoping that the VCUG will give the surgeon the information he needs and he'll agree that the catheter surgery is an unnecessary risk.
But we hit a big snag this week when we realized upon close inspection that Stephen's doesn't have a little hole for the catheter to inserted into (for lack of a better term....pee hole). Apparently, it's common that if it isn't used, it closes up. His pediatrician called it a mild adhesion. So we've been prescribed some hormone cream that we have to use twice a day to try to get the hole to open back up. if not, I guess Dr. Pohl will have to open it. So this has set us back with this whole urology thing. But hopefully we can get it all straightened out without any surgery involved.
In other "medical news" we've now started Stephen on a blood pressure medication because his blood pressure was steadily creeping up. Last week it ran in the 140's and 160's which I think is even high for an adult! And his red blood cell count is looking really good, so we've been able to come down on his weekly epogen injection. And his TPH has also come down dramatically which means his vitamin D deficiency is in check and his bones are healthier. All very good things!!!
And in "non-medical" news, we bought a new computer!! It's a super awesome iMac and I LOVE it! My old Dell was a total dinosaur circa 2004. So now that I have a new fancy computer, I can easily upload photos and videos with a snap of my fingers (even my iPad had gotten out of date because I couldn't sync it with my computer). So here are some pictures from this past week:
Here's Mr. Stephen helping me with some of my work
The little guy is now getting all four molars at one time, so there's a lot of finger chewing going on when there's no pacifier in sight
We also started a swim class this week on Wednesday evenings. It's Bill and Stephen time and they both LOVED it. And I had a blast just watching. Stephen had a really great time in the water and I'm hoping we can get him in the pool more than just one night a week.
And for anyone that was curious about Stephen's "baby spanx," here's a before and after with his spanx. It seems to be working pretty well and I think will be cooler for him in the Summer than the PD belt I just got.