Stephen's Journey: Movin' and Shakin'

Wednesday, April 11, 2012

Movin' and Shakin'

Here are some more recent pics of my little man (and some with the big man too!) and a video too of him laughing. There's something about a baby laughing that is just so funny and heartwarming. It just makes my heart smile!!!

Here's Stephen working on some tummy time. Still no crawling just yet, but he's really close! He finally actually asks to get down on his tummy, so that's a HUGE step! And he's putting the arm and leg movements together.

Here are some more pics of Stephen standing. He loves standing and is starting to take a few steps, so watch out world! Next Monday we're taking a field trip for physical therapy to a soft play room to do some crawling and climbing up steps and to try out different walkers. The one we have is great for standing, but it's a bit tippy, so we're going to go test drive some more before we buy a new one. Plus Mr. Stephen LOVES the lights and sounds on this one and gets a little distracted and forgets to move his feet. Typical guy...unable to multi-task :)

And here's a little video of Stephen standing in his crib, laughing like crazy at me behind the camera. It's a little grainy and you can hear me making noises at Stephen, but I think you'll get the idea!

If you're interested in seeing any other of Stephen's videos, go to www.youtube.com and put lschwartz531 in the search box at the top of the page and you'll be directed to all of Stephen's 27 videos.

2 comments:

AnonymousApril 12, 2012 at 3:32 PM
Hi Lindsey,
We love the new photos and will check out the videos--can't wait to see Stephen in action. We think Superman is starting to look a bit like his Mommie--especially the last photo of Stephen standing in his crib on your March 30th post. He is growing like a week and looks so healthy--can't wait until he walks!! You're right--look out world!!
Love to all,
Aunt LuAnn and Uncle Dick
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AnonymousApril 13, 2012 at 9:33 AM
Stephen seems to really enjoy being upright and on those two feet. Give him a pair of socks and shoes and he'll show you exactly where they need to go!
He enjoys his Mommy, Daddy, but especially feeding crackers to Mabel dog.
"YouTube" is a great resource for video clips of Stephen laughing and playing.
Hope all friends & family have a beautiful week-end.
Love to all .... Mimi & Poppy Noll
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!