Stephen's Journey: Waiting

Thursday, May 9, 2013

Waiting

Right now (10:30) we are sitting in the PACU waiting to hear when they'll take Stephen to the OR. All of the consents have been signed and questions have been answered and now we just wait.

Kristin went back into surgery around 8:45, so she's probably right in the middle of her surgery so some extra prayers for her would be much appreciated!

And as soon as the surgeon gets word all is ok, they'll come give Stephen some "sleepy" drugs and take him back. In the meantime we're hanging out watching Sprout and looking at all the awesome messages, texts, and emails we've been getting. Thank you all so much! They've definitely brought some tears and we really appreciate them all!!

1 comment:

JenMay 9, 2013 at 12:12 PM
Love your shirts!! :-) Love and prayers!
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!