Stephen's Journey: Admitted Today

Wednesday, May 8, 2013

Admitted Today

Just got off the phone with the hospital admissions; Stephen's bed is ready and waiting for him. So as soon as we're done with anesthesiology, we'll check-in at the welcome center and be directed to his room on the surgical floor.

But right now, we're spending our last morning at home lounging in bed, finishing up dialysis (we connected a little late last night), and watching Sesame Street. A big perk of all of us sleeping in one room! Then we'll get a good scrub in the tub and pack up. And about four cups of coffee for me ☕ 😀

Once we get settled in our room, I'll share the next plan for the day and hopefully some kind of time table for tomorrow morning.

3 comments:

AnonymousMay 8, 2013 at 8:59 AM
Good Morning Lindsey,
We just know that God's blessings will be with all of you tomorrow. Glad that things have gone smoothly thus far. We'll be checking the blog more frequently than our usual three/day. Although we cannot be in Philadelphia, our love, prayers and constant thoughts will be with you. Stephen, you show Mommie just how fast you can soak those diapers. Pee like a pro!!! :)
SUPERMAN--you ROCK!!!
Love,
Aunt LuAnn & Uncle Dick

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AnonymousMay 8, 2013 at 9:30 AM
Thanks for keeping us posted. He and all of you are in our hearts, prayers and thoughts.
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AnonymousMay 8, 2013 at 9:47 AM
We're so excited for all of you! This is absolutely wonderful! With everyone else, we're praying for more good news to be posted tomorrow! :-)

Kim & Brian
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!