Stephen's Journey: Recent Pictures

Monday, April 11, 2011

Recent Pictures

As requested, here are some recent pics of Mr. Stephen. Enjoy!!

5 comments:

Danielle HobbsApril 12, 2011 at 11:13 AM
He is PRECIOUS!!!!! I know you are so in love!! Let me know when you are ready for another session. I can't wait to meet him!!
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AnonymousApril 12, 2011 at 12:06 PM
He looks a LOT like his daddy! Such a cutie, glad you are all doing well. Keep it up, I know you all are tired but you are doing a great job. Take good care of each other!!
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UnknownApril 12, 2011 at 3:03 PM
He is so stinkin' cute! What an adorable little blessing! You are all such a precious family. Lots of love!
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AnonymousApril 12, 2011 at 3:55 PM
What a honey bunch. He is just THE most handsome little man in the world!! Sorry to hear that you are having a difficult time with the insurance company. Bureaucratic paperwork is the most frustrating thing. Take it one day at a time. Keep your mind focused on the main thing--Stephen. He has received the best care in the world from everyone who has touch his life. All of these people, from the doctors and nurses at the hospital to your family and friends are there to support you. You are never alone as you are always in someone's thoughts and prayers. Just think of all the mountains you have conquered in the past 90+days. The rest are just small bumps in the road.
Keep those pictures coming...we love just watching him grow!!
Hugs and kisses to all...
Aunt LuAnn & Uncle Dick
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{darlene} @ fieldstonehillApril 19, 2011 at 8:28 PM
wow! looking like daddy!!
What a doll baby that guy is {stephen, that is :)) }!!!!!!!!!!!!
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!