Stephen's Journey: Oops!

Wednesday, April 6, 2011

Oops!

So I guess I will NOT be winning mother of year this year because I clearly have no idea how old my own baby is! I said in my previous post that Stephen was four months old, when in fact he's only three months old. I think I probably told five people he was 16 weeks old today before I realized I had left my brain on another planet the past few days. My apologizes Stephen! Mommy loves you!!!! :)

3 comments:

UnknownApril 6, 2011 at 8:01 PM
One evening I said to Eric, "I'm so happy tomorrow is Friday and you'll be home to help with the baby all weekend!" He said, "Honey, tomorrow is Wednesday." I cried for a half hour. Don't you just love New Mom Brain? :) Love to you all!
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AnonymousApril 6, 2011 at 11:25 PM
You still get my vote for Mother of the Year, Linds.
Love,
Charlene
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ciaraApril 7, 2011 at 8:33 AM
As charlene said, you already have mother of the year in the bag, so dont fret.
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!