Stephen's Journey: Happy Birthday Lindsey

Wednesday, February 2, 2011

Happy Birthday Lindsey

Lindsey/Mom

Stephen and I wanted to wish you a very happy birthday today.Your are the best wife a man could have, and the best mom a little boy could have, and your the best friend anyone could want. Thank you for all you do for both of us. We hope you have wonderful birthday, you certainly deserve it!!! Happy birthday angel.

With all our love, Happy Birthday

Bill and Stephen

8 comments:

UnknownFebruary 2, 2011 at 4:37 PM
Couldn't have said it better-cheers Linny!! XO <3 AMC
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CIARAFebruary 2, 2011 at 6:15 PM
HAPPY BIRTHDAY!!!!!!!!!!!
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KimFebruary 2, 2011 at 7:06 PM
Happy Birthday! And what better way to spend it than with Stephen!
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AnonymousFebruary 2, 2011 at 7:44 PM
Happy Birthday Lindsey!!

Love,
Uncle Dick and Aunt LuAnn
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AnonymousFebruary 2, 2011 at 8:32 PM
Happy Birthday sweet Lindsey.
Tom & Mary Elizabeth
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Jess SweigartFebruary 2, 2011 at 9:59 PM
Happy Birthday to the Best Sister EVER!!!
You make me aspire to be a better mom, friend and person.
I love you, Linds!!
XOXOXO,
Jess
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SpykeFebruary 2, 2011 at 10:47 PM
Happy Birthday to the most wonderful woman I know...she just happens to be our daughter-in-law! Are we lucky or what!
Love Tish and Steve
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AnonymousFebruary 3, 2011 at 10:36 AM
From the famed Bob Marley this fits you Lindsey and your wonderful family. Happy Birthday!
One love, one heart
Let's get together and feel all right
Hear the children crying (One love)
Hear the children crying (One heart)
Sayin', "Give thanks and praise to the Lord and I will feel all right."
Sayin', "Let's gt together and feel all right."
Love, Sue and Ron
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!