Wednesday, December 21, 2011


Thankfully, Stephen's respiratory condition is getting better, so we are really thinking that we'll be home for Christmas; but, things in the hospital are just as stressful, if not more, than they have ever been. And it comes down to a lot of factors all happening at the same time. The albuterol and steroids are still wreaking havoc on Stephen's temperament and demeanor, especially at night. We've decided to take turns staying at the hospital because there's no sleeping at night and what's the use in having two super cranky parent's when you can have just one? Also, the respiratory panel still hasn't come back from the lab, so Stephen's still on isolation. That means everyone that comes in and out has to put on a gown, gloves, and a mask. And I'm not allowed to go anywhere on the floor; including the pantry to get water or coffee. I have to ask a nurse to get it and that's not their job, nor their concern. Yesterday, Santa Claus came around again to see the kids, but because of the isolation, he wasn't allowed to come in Stephen's room :(

And today I spent forever trying to figure out why Medicare is denying all of Stephen's prescription medications and how I can drop his Part D Medicare since it seems completely useless. But no one has any answers; not Medicare, not Medicaid, not the County and certainly not anyone here at the hospital or the social workers. It's such a nightmare! The answer I keep getting from people is that they've never heard of someone getting both Medicaid and Medicare or that he has a very complicated case and I'll have to talk to someone else. Why can't someone just do their job and find the answer? All I need to know is that I'm making the best/right decisions for my child's healthcare.

Ugh. Can you tell I'm a cranky person that just wants to go home!? At least they keep weaning Stephen off of the high-flow canula and breathing treatments and unless there's some major set-back, we should be home soon because I can't get out of here fast enough.


  1. Linsey,
    So happy Superman is feeling a little better. We are praying that he will be home in time for Christmas. We are sure that Santa will be bringing lots of presents his way!! Dealing with insurance is the most frustrating thing in the world. What usually works for me is when you can't get an answer out of someone--ask for their boss--if the boss can't answer it ask for his boss etc. The buck can only get passed so far until it has to stop. I have also tried the line "here are my policy numbers...the test (or whatever) is covered. Either file the correct claim or tell me what to do or your not getting paid". Sometimes you just have to dig in your heels and get nasty. Stephen's care is first and foremost...everything else is secondary.
    We love you and hope you soon get some much needed rest, You are in our thoughts and prayers....
    Aunt LuAnn

  2. God bless you all !!! We are always thinking of you sending lots of hugs! Hope you get out of the hospital soon !!!!! Love always Carrie Tom CC Tommy and Quentin