Stephen's Journey: Picture of Stephens departure form the NICU and his arrival at home

Friday, March 4, 2011

Picture of Stephens departure form the NICU and his arrival at home

I was writing a blog post and just as I finished it froze and erased everything I had written, so since it is 11:45 pm, I will just put up what everyone wants to see anyway. Pictures of the little man coming home!!!!!

11 comments:

AnonymousMarch 4, 2011 at 8:06 AM
These photos brought tears to my eyes. I'm so elated to see that Stephen is finally home. Best wishes to you and Bill as you get to enjoy your new little guy at home!
-Colleen
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CiaraMarch 4, 2011 at 8:39 AM
YAY!!!!!!!!!!!! He looks so wonderful Linds! You and Bill couldn't look happier. What a day to celebrate! I hope your first night went well.
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AnonymousMarch 4, 2011 at 9:01 AM
Dear Lindsey and Bill,
The are the happiest picture we've ever seen!! Stephen looks so wonderful and the two of you look over the moon to finally have this little man all to yourselves.
Love,
Aunt LuAnn and Uncle Dick
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KimMarch 4, 2011 at 10:34 AM
Brian & I are thrilled for all of you! It's wonderful that Stephen is now at home with you, Bill & Mabel!
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Rossetter TwinsMarch 4, 2011 at 12:27 PM
What an amazing blessing for you entire family! Enjoy that sweet baby boy:)
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Danielle HobbsMarch 4, 2011 at 2:25 PM
CONGRATULATIONS!!!!!!!! I cannot imagine how you feel right now!!! I'm so glad the prayers have been working (and they will continue). God is so amazing!
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UnknownMarch 4, 2011 at 3:22 PM
Congratulations! These pictures made me cry. We couldn't be happier for you three! Praising the Lord and still praying for your sweet family!
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AnonymousMarch 5, 2011 at 9:08 PM
AMAZING
STUPENDOUS
MIRACLE
BLESSED
CONGRATULATIONS
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Julia RobertsMarch 6, 2011 at 12:19 AM
Enjoy the bliss! Welcome home Baby Stephen!
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AnonymousMarch 6, 2011 at 11:33 AM
Welcome home beautiful Stephen! Our prayers for your little family will continue.
Mary Elizabeth
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DebMarch 9, 2011 at 10:39 AM
Ummm, Lindsey, did you even have a baby? You look wonderful.
YIPPEE!!!! Sooo happy for you guys!!!!
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!