Monday, May 2, 2011


Surgery was canceled!!! YEAH!! In true Stevie-wonder fashion, the minute the doctors mentioned surgery, he started getting better. If you remember back to the NICU, they started talking about tracheotomy and his respiratory issues started getting better. The little guy knows how and when to pull through when it matters the most!

So after his cultures and everything came back on Saturday, the two nephrologists and the surgeon conferences and decided that they really didn't want to replace this catheter because it's working so great and always has. The worst thing that could happen would be that they would replace the catheter and then the new one wouldn't work and we would fall way behind on his dialysis and then basically have to start from scratch. So they're going to continue to treat the staph infection with antibiotics in his dialysis fluid at home and watch his cell counts via blood tests to make sure they completely kill all of the bacteria. The course of at-home antibiotics is three weeks. Then hopefully all of the staph infection will be gone.

The only questionable outstanding issues we still have are the bubbles or air in his catheter tubing and his g-tube. The bubbles are still a complete mystery to everyone. But since they don't seem to be interfering with his dialysis or hurting him, they're not going to do anything about it at this time. But his gastroenterologist needs to fix the g-tube issues ASAP! It's still leaking and it was the leaking that originally caused the rash which might have lead to his infection in the first place. They really need to get on the ball with his g-tube or they're going to have deal with this Momma when she's pissed. Not fun for the person on the other end of my anger. Although I can always get Bill involved and then they'll be really unhappy they didn't listen to me when I told them it wasn't working :)

Hopefully we will be discharged by 5 pm today and home snuggled in my own bed tonight for the first time in almost a week. Now just pray Stephen sleeps as well in his crib at home as he's been sleeping here at the hospital. I'll be rigging up his home crib to mimic the inclined crib here at the hospital for sure!

And I miss my other baby like crazy!! She's having an awesome time at Grandma's, but I'm sure she misses her Mommy, Daddy, and brother too.


  1. Way to go Superman!!!! Hope all continues to go well. Our thoughts and prayers will continue to go your way!!! We are so happy for all of you!!!!

    Aunt LuAnn & Uncle Dick

  2. What wonderful news! We are so so happy, and proud of little Superman! Still sending lots of love and prayer.

  3. Hi Mom, Dad and Stephen--
    I am at Grandma's and she told me about Stephen!!!! Yippee....I am coming home tomorrow after I get my toenails cut, Grandma says! Can't wait to see you all and give Stephen a kiss.
    Love MABEL SCHWARTZ arf-arf!! xoxox

  4. Stephen is such an amazing little guy!! Prayers coming your way every day!