Sunday, May 1, 2011

Bad News

Today (Saturday) was supposed to be our dischrage date...again, but alas, we are still in the hospital. And on top of that, we got really bad news today. Stephen needs surgery to replace his peritoneal dialysis (PD) catheter. The worst and most unexpected outcome from this bout with peritonitis.

This morning when we got up and all day, Stephen has been in a great mood smiling and playing and looks back to his normal self. So I was sure we were going home today. But once the final cultures came back from yesterday, it was clear that the infection is still going strong and the antibiotics aren't killing the bugs in his belly. Plus, his dialysis fluid is still cloudy. A sure sign that the infection is still around.

The nephrologists and dialysis nurse believe that the staph has settled into the plastic cuffs on the inside of his peritoneum. That's why the antibiotics aren't working. Plus we noticed today that there are bubbles inside his catheter tubing which means air is somehow getting into the catheter from the inside. It's a always a closed loop "system" so it doesn't make any sense how that has happened.

We have no idea when they're going to do the surgery, but I have told them that only Dr. Kim will perform surgery on Stephen. He was the surgeon who removed his kidneys and placed the first catheter, and we have complete confidence in him. We think he's brilliant and on top of that, not only is his name Stephen as well, we really like him.

So right now our stay is completely open ended but with any luck we will be home by the end of the week.


  1. Sorry Linds to hear about Stephen's recent "booboo". He's a tough little guy as he has proven in the past. It's good to hear is happy and smiling like his normal self. Lots of prayers and hugs for you, Bill and Stephen!

  2. I'm so sorry to hear that the infection is not clearing and needs more surgery!! :( We are continuing to pray for him!

  3. Oh goodness. I'm so so sorry to hear about this, but God will bring your little miracle man through this too! So much love to you all.

  4. We love you all and will be thinking of you and praying for you daily. Please keep us updated.
    Mary Elizabeth