The actual blood draw went great! Stephen was given a couple of tasks to help out the phlebotomist, and he was so distracted and busy chatting away with all of the ladies in the room, that there weren't any screams or tears! They did an amazing job!!
But two hours later, I was having the dreaded "bad lab results" call with his nephrologist at CHOP. Basically, his red and white blood counts are trending downward and his creatinine is holding steady at 0.6, so they want to admit him tonight at CHOP to hydrate him, do labs in the morning and an ultrasound of the kidney.
Knowing about the issues he's been having lately with anxiety, I was able to get the doctors to agree to allow me to hydrate him overnight at home through his gtube and to do bloodwork and an ultrasound outpatient tomorrow at CHOP. So even though it will be a 4am wake-up call tomorrow, at least we were able to buy ourselves one more night at home and a little more time to get our ducks in a row with work and packing before leaving for Philly. We are definitely going to pack a bag for a couple of nights (we've been down this road many times!), but hopefully, Mr. Stephen's kidney will cooperate and we can come up with an outpatient plan of care and avoid a hospital admission all together. But I guess we shall see what tomorrow brings.