So...what else is new? Well....I'm still working on getting Stephen into preschool. It's been a serious thorn in my side and has been hanging over my head for weeks. It's one of those things I think about every day when I'm in the shower or standing in the bathroom brushing my teeth. There has to be a way to solve this problem, because I know Stephen isn't the only kid going to preschool with a feeding tube; but, neither myself or anyone else has been able to resolve it. The issue still is how to get Stephen fed while at school. He's enrolled and scheduled to go to a private preschool two full days a week; Tuesday and Thursday, but there needs to be someone to do his breakfast and lunch tube feeds at school. As I've mentioned previously, because of Stephen's unique insurance issues (being a pediatric patient that's Medicare primary), I haven't been able to find a nursing agency and the agencies I have talked to, have also said that they likely wouldn't be able to find a nurse to staff this type of job because the hours are so small. So....I'm now at the point that if I really want him to go to preschool, I'm going to have to hire someone myself. I really don't want to do that since I'm already paying much $$$ for preschool, but I don't really have an other option. I'm going to be at work, Bill will be at work, and it's impossible to think that one of us would be able to drive to school each time and feed him. Plus, I really don't want to interrupt his day. I posted a message on Stephen's Facebook page asking for any ideas, so I'll do the same here. If you have any thoughts or ideas or have found yourself in this predicament, please email me or comment below!! So far, none of the social workers, case workers, or nurses have been able to help. So in the meantime, I'm still working only one day a week while Bill's Mom watches Stephen, and I'm doing the best I can at making sure he's interacting with other kids...although kinda, sorta, failing at it (having serious Mommy guilt...but that's a whole separate post!).
And in the meantime, Stephen's progressing by leaps and bounds!!! It's truly remarkable!! He's now counting up to twelve, saying his ABCs, speaking in almost complete sentences (some of the time), and just being a total sponge when it comes to everything!! He makes me laugh out loud all the time by the funny stuff that comes out of his mouth and his physical abilities have just skyrocketed!! He's just a little machine constantly running and dancing and jumping around. His newest thing is taking walks around the neighborhood. Usually in the afternoon after his nap, we'll take a long walk (well, for him a run) up and down the walking path in front of our house or do laps around our neighborhood. I'm really not joking when I say this kid ran at least a mile the other day! And lucky for Mabel, she gets to come along too :) Our other favorite activities continue to be going to the library where we plays on the computer and then we look for truck and race car books, running up and down "the hill" aka our ramp out front, and playing the yard. As long as Stephen gets play outside, he's the happiest kid on the planet! Can you tell I'm one proud Momma!!!!
I've taken a boat-load of pictures lately, so here are some of my favorites. And on another exciting note....Stephen's kidney donor, Kristin and her husband Matt, are coming to visit us for the weekend! Yippee!!
|Finally got Stephen to wear his feeding pump backpack. It's the first time he's EVER put it on.|