Stephen's Journey: Germs, germs, and more germs

Monday, January 7, 2013

Germs, germs, and more germs

Well we're all now infected with lots of germs in our house including poor Stephen. He's a snotty, sneezing, coughing mess and I'm just thankful I already had the germs myself or I certainly would be getting them from him now. The poor little guy has been so congested that he hasn't really been able to sleep and he's been running a fever for over 24 hours. So we're heading in to see the pediatrician in the morning. Although I'm pretty sure we've just got to let this thing run its course. And unfortunately, that's a good week. I'm still not back to normal yet myself.

And then I guess I'll need to start sanitizing the house. Fun fun.

I hope you all are able to avoid this flu!! Put yourself in a big bubble right now before its too late! :)

2 comments:

AnonymousJanuary 8, 2013 at 12:34 AM
I have just read your inspiring story, I found it while researching pkd because my son was diagnosed with this when I was 18 wks. I would love to speak with you, if this is possible please email me kasia1414@msn.com
ReplyDelete
Replies
AnonymousJanuary 8, 2013 at 9:13 AM
Dear Linds,
Hope this passes fast...Keeping you in our thoughts and prayers while all of you recover.
Love,
Aunt LuAnn
ReplyDelete
Replies

Add comment

Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!