So once we get the surgery done, than we have to wait about two weeks for him to heal, and then we go back to the hospital to have the VCUG where they'll insert a catheter and check to see what his bladder size and capacity is like. Then it's back to Dr. Pohl's office to review the results and determine what's next. Hopefully the answer will be that Stephen doesn't need to do bladder cycling and we'll be done with all of this and Stephen's transplant surgeon will agree and activate him on the transplant list. That's what we're hoping for. And then it'll just be smooth sailing until transplant!!
In other news, Stephen's growing and thriving! He's trying so hard to walk and wants to be on his feet constantly! Both grandparent's bought him a walker for him to scoot around their houses when he visits and he loves it! He rolls around everywhere opening up cabinets and chasing after Mabel. And he's super vocal now! He loves to hear his only voice and makes this cool gargling sound in the back of his throat that he uses when he wants to get moving. We call it his motor! And he's now able to tell me by pointing and say "m" sounds and mama when he wants something. Which is so huge! And he's become a big helper with his medications. I put the syringes in his little tube and love to push the plunger down. It's a really game for him and is so great for his fine motor skills. I'm so proud of the progress he's made with his speech and fine and gross motor skills. Some times I just sit and watch him and am in complete awe. He amazes me more and more each day and sometimes the emotion and the feelings of what he's been through and what he has accomplished just totally overwhelm me. And I swear each day, I love him more and more!!
Here are some pictures I took during our recent trip up to York to see Mimi and Poppy. The first two were on a little ride at the Mall with Mimi while Mommy got to do some shopping. And the last one was on a walk through the neighborhood. We took two long walks throughout their big neighborhood and Mommy learned that it's time to slather on the sun tan lotion!! :)
And here was a super proud and precious moment from last night. Stephen still isn't crawling, but it's such a blessing that he will now roll over onto his tummy. He always hated being on his tummy probably because of all his tubes and surgeries. But lately, he's been rolling over and sleeping short periods of time on his tummy which is such a huge milestone for him. I was so excited last night, that I had to take a picture! And then when Bill and I went in at 11:00 PM to give him his medications and hook up his over night feed, we found him cuddling with his monkey. Monkey and pacifiers are his bed time staples! That face just makes me melt every time!!!