There is something though I really wanted to share with everyone; Stephen and I participated in a really cool event a couple of weeks ago on World Kidney Day. I was extremely blessed to have been asked by the American Society of Pediatric Nephrology (ASPN) to speak during a Congressional briefing on pediatric kidney disease. The World Kidney Day event theme was, "Kidney Disease in Children: Act Early to Prevent It!" and took place in the Capitol Hill Visitor's Center. Stephen, Bill, and Bill's Mom Tish, came along with me, and I spoke with other pediatric nephrologists and a pediatric nephrology researcher about a number of specific issues surrounding pediatric nephrology. how Medicate and legislature can affect pediatric patients, and more specifically for me, what it's like to have a child with kidney disease.
I have done some advocacy efforts in the past on Capitol Hill, but typically have less than 5 minutes to try to get my story and point across to Hill staffers. However; in this setting, I was able to spend almost 15 minutes sharing our story. It was a wonderful opportunity and one that I'm grateful to have had. And best of all, Stephen was there and when I asked him to join me at the podium at the end of my speech, he told everyone in the crowd that the best part of getting a new kidney is growing big and strong! He totally stole the show as you can imagine! And was totally unprompted to respond with such an awesome answer!
Here's a link to a recording of my part of the briefing. I'd love it if you could take the time to watch and listen to my speech (it's about 13 minutes in length) to help keep the conversation going about these issues.