Stephen's Journey: Results

Friday, June 28, 2013

Results

Superman did it again!! Biopsy results just came in and there was NO sign of rejection! The doctors will continue to monitor his antibodies, but for now we are celebrating and going HOME!! First thing in the list once we get home....going to the pool! Oh, and have one very large and very cold beer!

6 comments:

BethJune 28, 2013 at 3:42 PM
SO happy! Have a great weekend!
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AnonymousJune 28, 2013 at 4:31 PM
Hi Linds,
I knew in my heart that SUPERMAN wouldn't disappoint us. Enjoy the pool and have a cold one for me and Uncle Dick. We will celebrate here in Lehighton!!!
Love, Aunt LuAnn
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AnonymousJune 28, 2013 at 5:22 PM
Happy to hear the great news!
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AnonymousJune 28, 2013 at 7:06 PM
Great news! Once again, you have shown your unusual talent for dealing with whatever needs to be taken care of, and having an outstanding attitude that reflects your caring and love.
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AnonymousJune 29, 2013 at 8:05 AM
Wonderfull news! Have a fantastic weekend
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AnonymousJuly 1, 2013 at 8:35 AM
How did your weekend go? I hope the 3 of you had some fun and got to relax.
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!