Stephen's Journey: Hilarious Video

Monday, July 25, 2011

Hilarious Video

I hope you find this video as funny as Billy and I do! I totally forgot we had shot this video right after Stephen came home from the hospital a few weeks ago and watched it last night at bedtime (I keep my Flip camera in Stephen's nursery to capture fun little moments). We must have watched it a dozen times; each time funnier than the last. I find the cat paws and muscle flexing especially funny. Unfortunately, it's at Stephen's expense, but hopefully one day he'll find it really funny too!! Enjoy!

p.s. Now that I finally figured out how to upload videos, hopefully I'll get some more posted soon.

4 comments:

Kelly GalloJuly 25, 2011 at 4:34 PM
I love that boy! Too cute!!!
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AnonymousJuly 26, 2011 at 2:57 PM
OMG Lindsey that is just too cute!! 'Can't wait to show it to Uncle Dick. We had a wonderful time with your folks in Dayton--I took your Mom to Jungle Jim's and she loved it!! The air show was great albeit extremely hot--the beer and drinks at the Texas Road House cooled things down and we all forgot how much we suffered in the heat.
So glad to see that SUPERMAN is feeling better and flexing his muscles! You are all in our daily thoughts and prayers....
Love,
Aunt LuAnn
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AnonymousJuly 28, 2011 at 8:07 PM
Linds - It brings me so much joy to see you all having a great time and laughing. Let the good times roll!!! Love, Colleen
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ciaraJuly 29, 2011 at 8:54 AM
This video is awesome! I think about Stephen every day. I always worry and pray for him, so it was just great to see a beautiful, happy "regular-old" baby boy. Enjoy him, and keep making him laugh.
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!