Stephen's Journey: New Pics of Stephen

Wednesday, May 18, 2011

New Pics of Stephen

I know I desperately need to update everyone on how Stephen is doing and what's happened in the past week, but I can't muster up the energy to type tonight. Sorry! So instead, here are some recent pictures. I'm sure you like these better than listening to me ramble on and on anyway :)

Photo shoot from today in our new outfit for chilly Summer nights

Stephen's first real bites of food. Yummy pears!

Helping Dad work

Stephen and Mommy on Mother's Day

Goofing around

5 comments:

UnknownMay 18, 2011 at 10:21 PM
Wow! You can see sooooo much personality developing in that adorable little face! Makes me smile. Still sending lots of love and prayer.
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SuzanneMay 19, 2011 at 9:27 AM
Seriously? These pictures are so precious. I love his smiles. He is getting so big and more handsome as each day passes.
Xoxo.
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rachelMay 19, 2011 at 9:43 AM
Linds, you look beautiful! Hope you had a wonderful Mother's Day! ( :
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lehighfillMay 21, 2011 at 3:24 PM
Love the pictures - he is SO handsome! Prayers still coming your way everyday!
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friendfinderMay 25, 2011 at 5:03 AM
i really like this blog..
holidays india
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Our Crazy Kidney Life

As many of you already know, our son Stephen, was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD). When the disease was discovered during my 27th week of pregnancy, Stephen was given a less than 1% chance of living more than a few hours past birth. He was to have such severely underdeveloped lungs that the doctors said he would likely not even take one breath. However, on January 4, 2011, we were granted our 1st miracle - and Stephen came into this world crying (and breathing!) and fighting for his life with fierce determination. At 6 days old he had BOTH of his kidneys removed and began peritoneal dialysis. Stephen came home from the hospital when he was 59 days old requiring 12 hours of dialysis every night as well as enteral (feeding tube) feeds during the day and overnight.

On May 9, 2013, we were granted our 2nd miracle, in the form of a new kidney from an extremely generous friend. Stephen received a kidney from a non-related living donor at the Children's Hospital of Philadelphia. He spent 13 days in the hospital recovering from his big surgery and ever since has been living life the fullest! His life is still a delicate balance of medications and weekly lab work, but he's an extremely vibrant, loving, active 2.5 year old.

This blog is Stephen's journey told through my eyes (his mother's), thoughts, and emotions, with extreme highs and lows. But there's no way we would be where we are today without all of the support, thoughts and prayers from our family, friends, and readers! Thank you!!